Here’s our Little Kandice on her first day in real school. We’re so proud!!
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Today we found out my brain MRI results! My first tumor is now just scar tissue and the second one is shrinking and no signs of any activity!! We are so happy! Now, I can continue with my therapy and become more active! Kandice starts 1st grade at the elementary school just down the street next Wednesday and I am planning to walk her to/from school as much as I can since I can’t drive! Now that I’ve been off one of my chemo meds, my hormones have been raging and I just feel real funny! I haven’t had these symptoms in probably 3 years since before I started chemo. My hair is starting to grow back to my normal texture – with the initial IV chemo, my hair all fell out but came back thicker but straight; after being on the oral chemo, my hair has been curly and kinky and I don’t like it at all! I will probably have to get my hair cut soon to get the curly/kinky off and get my normal hair back!! Now, I can finally complete all the treatments I need and finally start living a “normal” life!! Thanks to everyone for your thoughts and prayers – they really worked!!
Today I went to see my Endocrinologist (who’s been watching my thyroid function and also helped me wean off the steroids) and my Oncologist and have some good news. My cholesterol is down to normal limits and my weight is down!! Then, my oncologist said that I’m probably in “remission” from the cancer – but I don’t want to be too optimistic since I had that 2nd tumor pop up so we decided instead of totally going off the chemo drugs, I would just cut one of them out and keep taking the other just to ensure that this thing doesn’t come back. I also have to do more tests (I need to do another Brain MRI now and another Echocardiogram in a couple months) and won’t have to see my oncologist for 4 months unless something comes up on my MRI. My endurance is definitely getting better and my core strength is slowly getting stronger so I guess I’m on the right path for a decent recovery! I just hope this dizziness gets better since it just frustrates me!! Today was a good day with some good news! I just hope it gets better and better!
I just finished my PT session and was able to walk on the treadmill at 1.5 mph with a 5% grade for about 5 minutes with my body weight supported with a harness and walked for a total of 20 minutes at 1.2-1.5mph from 0-5% grade and really didn’t huff and puff too much -I was actually able to talk with the PT without getting short of breath! My endurance and strength is definitely getting better – just wished this dizziness would get better at the same rate! Now I’m pretty much up most of the day, but I definitely still need a lot of breaks (especially lying down) but at least I’m not in bed most of the time! I’m trying to get back into a daily routine since Kandice will be starting 1st grade at the elementary school just down the street on Aug 25 – I’m planning to walk her to and from school as much as I can – I’m also looking into starting to do some work – not as a treating therapist since I can barely keep myself balanced but possibly consulting or something – anyone have any suggestions? I’m thinking it would be good to work part-time as a consultant or possibly continue doing wheelchair assessments but I’m open to doing different things since I think I’m getting strong enough where I can work on a part-time basis – I just have to look into it a little more.
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Yesterday, I woke up with a bout of food poisoning or something so I was laid up most of the day, with stomach cramps and running to the bathroom every 10-20 minutes but thank goodness it subsided by lunch! I think it could’ve been the leftover chicken curry I ate for lunch the day before or the poke I had for dinner the night before, both things only I ate – I didn’t eat very much yesterday in fear of the cramps coming back – just rice for breakfast and cold somen noodles for lunch so by dinnertime I was really hungry but couldn’t eat very much – today I woke up feeling like I was run over by a truck – I think I feel more dizzy today since I didn’t do very much activity yesterday – I think the more active I am, the less apparent my dizziness is – doesn’t mean I have less dizziness – I probably perceive it to be less since the activity keeps me from focusing on it – but this dizziness is really making me frustrated – it keeps me from doing a lot – like driving or going back to work – the positive thing I should focus on is that I am getting stronger and slowly losing the weight I gained from the steroids – but losing 4 inches in height comes with a lot more challenges (my skin doesn’t know I lost 4 inches so it has not accommodated to my new stature) – everyday comes with new challenges but hopefully I can get through them without incidence (like yesterday) – I realized that I don’t bounce back as fast as I used to and I find myself with less and less patience.
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Satomi's Cancer Blog 