We just saw the neuro doc on rotation this weekend. He was quite happy with Satomi’s progress but wanted to keep her another day to solve her… uh… “digestive” issue. He wasn’t the surgeon so he is admittedly playing it safe. It was brain surgery after all. I have no problem with playing it safe and it’ll give me time to get her room ready.
When things are quiet just before bed or in the morning, I read Satomi a sampling of the many positive comments to the blog.
I ask that you please keep sending those in as it makes her smile and it gives us something positive to talk about.
Thanks very much.
I watched Satomi do her Physical Therapy session this morning.
She walked up and down strairs, down the hall, forwards, backwards, sideways, with her eyes open and closed, toe-to-heel, slow-fast-slow-fast, and with the PT bumping her. Her balance was good, no dizziness, no stumbles, and most importantly her eyes didn’t twitch. It was a decent work out. It was inspiring. She talked “shop” with the therapist while all this was going on so her brain is working wonderfully.
We’re still waiting for the Doctor for his opinion but I’m confident that she’ll be fine at home.
I’m so proud of her.
I got back here earlier this morning so I wouldn’t miss the Doctor. Satomi is only somewhat awake. Her spirits are OK but she’s a bit sad. I had to squash her negative thoughts real fast.
After we all had left last night she apparently woke up and with the nurses help, went for a walk around the unit. That’s our girl!
There’s still talk of her coming home today. I’ll let you all know if its true.
For Satomi, the Day was one of rest and recovery. Lot’s of sleep due to all the pain-killers. Enough drugs to allow her to sleep through all the noise and commotion.
We had several visitors today. It was nice to talk to people.
I was impressed that they all held their tears. It is so very hard to do. The sight of our sweet little Satomi lying there is very upsetting. The thought of brain cancer is incomprehensible.
For any of you that may still be visiting, please, please, please try not to get upset in front of Satomi. She’s in a sensitive state and a crying friend will definitely upset her. I really don’t want to have to drag you into the hallway.
Our Oncologist called and confirmed the basic plan. She is very supportive and we will be seeing her soon. She is already working at getting the scan organized and approved by our insurance. The Pet-CT scan is almost $5k a shot (the pre-negotiated Blue Cross price) so pre-approval is essential. Insurance already covered it once so I don’t expect any issues.
I ended up venting to a couple of friends tonight. I guess you could call it a rant but I wasn’t upset when I spoke. I think “vent” is the perfect word. All of my questions, concerns, and frustrations, the best and worse prognosis, the likely outcome, the possible treatments, the impacts to our family and professional life, and on and on. I didn’t intend to vent but the words just flowed well. It was a good exchange of info but unfortunately I didn’t feel better afterward.
There’s still a good chance of discharge tomorrow but I’ll talk to the Doctor in the morning to check.
Good night my dear wife and all of you out there in blog land. I’ll be there again in the morning.
Satomi's Cancer Blog 