Weaker

Satomi seems weaker today.  She has trouble rolling over in bed and had to call me to help.  She still stands ok with assistance but I’m sure the twenty-four inches that she must walk between the potty and bed is her limit.

Yesterday she had her first seizure in over a week.  Today she had another one.  They were both relatively minor and only lasted a minute or so.  She was mostly conscious during her seizure today and responded positively to my inquiries.  But even so, her body trembled and she repeated herself; Her speech was slurred and her gaze was distant.  As normal, she had a headache afterward. 

As I mentioned in my previous post, I am concerned how things will change as symptoms progress.  I use several techniques to manage my emotions.  One of the most fundamental is a daily routine.  The routine brings familiarity and eventually results in confidence.

What comes next will not be routine so we’ll have to figure it out all over again.