An Open Subject
We are still discussing home care. Satomi is concerned that the girls will be traumatized if she degenerates while at home. She wants to enter a hospice facility as her illness progresses. So far everyone disagrees with this position including our RN, several of her doctors, my therapist, Satomi’s best friend, just about everyone we’ve bothered asking, and me.
The consensus thus far is that our girls would be better off if they are involved with the process and spend the maximum time with Satomi possible. I would definitely change my position if Satomi’s care warranted 24/7 care beyond our capabilities but I remain confident that we can care for her. Maybe I’m fooling myself but I guess we’ll just have to see what happens.