A Month Off

Many of you have probably noticed that I’ve taken the last month off.  I’m sorry about that-It’s something I just had to do.  A lot of things have changed but first things first.

Firstly, Satomi is doing well.  She had her quarterly brain MRI and MR-Spectroscopy tests done in late May.  The original tumor is inactive and the second lesion has shrunken.  Cancer-wise, the news is as good as can be expected.  We are all happy.  Our next set of tests should occur sometime late July or early August.

Satomi has completed Phase-1 of the Vision Therapy “treatment” and is almost done with Phase-2.  We can’t really tell if it’s made any difference yet but we remain optimistic.

Satomi’s weened off of the Beta-Blocker completely and only takes 2 doses of pain-killers a day for her back.  The infamous kidney stones are completely gone and her weight continues to steadily fall.  The oral chemo pills are still a lot to swallow but luckily the side-effects remain minimal.

She’s been pushing herself a lot.  Satomi is back to her Vestibular (Physical) Therapy twice a week and her in-office Vision Therapy once a week.

Her household activity now includes the laundry, loading/unloading the dishwasher, and some cooking.  It remains limited by her double-vision, dizziness, fatigue, and back-pain but overall things have improved dramatically.  She even spends time on the computer playing video games.  It seems to be good practice for her eyesight.

We are all so happy that she has the ability to spend more time with the girls.  She plays games with them all the time.  With a bit of wheeled help, Satomi attends Kandices basketball practice or their swim lessons.  Just a few weeks ago, we spent a couple of days at Disneyland and watched our little Kandice graduate Kindergarten.

Our family life is going well.