Slept really well last night! Sean nudged me when he came home so I knew everything was good! Woke up around 8 but didn’t get out of bed till just a while ago! Really dizzy!! Getting hungry! Just waiting for Sean to finish showering so I can go down to eat some breakfast! Think this decadron is making me hungry as well as weak, again, but hopefully will be on top of it this time (no more 40# weight gain in 3 months!) – I just have to move more but soo dizzy!! All my symptoms contradict what I should do so no motivation! Getting more e-mails and texts from friends I haven’t seen in years! Thanks for writing and will reply soon!
My scalp is starting to be sore – probably almost time to fall out! Have a great day and will update later!! Today will be interesting! Jillian’s school is having a Holiday Sing – probably will go but we’ll see!
Just got a text from Sean a short time ago – he’s landed at LAX and he will be home soon! Too bad it wasn’t from John Wayne, but hopefully the drive isn’t too bad this time of night! The girls r sleeping, I’m actually also getting sleepy! Tomorrow, my sister has a housekeeper going over to their house in the morning so if Sean wasn’t going to make it back tonight, things would be a little different tomorrow! But now, everything should be just cool! My mom’s still staying over to help me and the girls in the morning but now, my mom could go straight home after that and Sean can take me to radiation! If Sean didn’t make it back, my brother-in-law would’ve have to let her in then pack up his kids to take them to school and leave her at the house alone, which isn’t necessarily a big thing – they just like someone to be around so usually my mom is there! Now, my mom can be there for the whole time so she can let her in/out! If he didn’t land tonight, I may have been making some crazy text or e-mail requests in the morning but everything USUALLY works out in our favor and I know what a great support system I have so I try not to worry too much unless I really have to! Hopefully, Sean will be here shortly! I’m tired now so may just get some shut eye!
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The decadron has seemed to calm things a little but still not able to hear, constantly dizzy with a headache and double vision/nystagmus is not fun! I can’t even walk to the bathroom without holding onto furniture to get there and once I’m on the toilet, I feel like I’m gonna fall forward and bonk my head on the door in front of me! Good thing Sean put in a grab bar next to the toilet – it keeps me from falling off! I always have to wall/furniture walk now – can’t rely on my balance anymore! I also have to keep one eye closed to keep me from seeing double which also throws off my balance! Even writing this blog is starting to get hard since I reread it and figure out my mistakes and go back to fix them and that takes time!
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Hello everyone. I’m on my way home from my tradeshow in Orlando. I’m using the wifi on the plane-It’s butt slow but seems plenty fast enough to update a text-only post. I think I’m somewhere over Texas now.
This was my first extended stay away from home-I think. It was quite stressful on the first night-I didn’t get to sleep to nearly 5am local time. It’s a good thing I left the drapes open and the sunlight was bright in the morning. I was worried about Satomi, the girls, and my Mom’s operation. It was difficult to keep my focus.
The “PowerGen” show is an annual show for the power generation industry that alternates between Orlando and Las Vegas. The last one I attended was in Vegas back in 2001, I think. It’s just as big as I remember it. Many of the bigger companies skipped the show because of the slow economy. I didn’t undertand why until I realized that the cost to exhibit there was almost $40 per square foot and most of the bigger exhibitors had over 1000ft2 each. And that’s just for the display space.
If all of my plans come to fruition, I hope to have a small booth at the 2011 Las Vegas show. I spoke to many colleauges from back in my Mitsubishi days. It was reassuring that they all remembered me-I guess having a hanging name tag helps the memory a bit. I spoke to several key industry players about my Patent (without the technical details of course) and all agreed that there is a definite market for it. But all also said that I need to build a prototype and test it first. If it works, the retrofit market could be well over a hundred units. For those that don’t know, that’s a lot.
I also spoke with several potential clients for engineered equipment. The first step is to get on their potential vendors lists and this show has allowed us to start the process.
We are still discussing the options for licensing my patent. The interest is still high and I will be meeting with our ptential licensees after we get home. I spoke with them informally at the show and all are optimistic. I was very happy to hear that it wasn’t necessary about the cost of the license but how my patent would work with their market strategy and the details of implementation.
Overall I am very happy with the trip. Mitsubishi got us free tickets and the we used our airline miles to pay for the airfare. The entire trip cost us only a few hundred dollars. It was well worth our effort and was very motivating-Just what I needed.
I hope to be home in my bed in about 3 hours.
I just went downstairs to have some dinner and having trouble just getting up and standing still (soo dizzy!). Even sitting up has become hard – I can barely stand in one spot before I feel like I’m gonna lose my balance! I need to hold onto something constantly!! I just took my next dose of decadron with dinner so hopefully it will get better – just got upstairs and in bed with my mom’s help! Girls want to play but I just can’t with this dizziness/headache! I hope the decadron kicks in soon! Don’t like this feeling – girls watching some TV before bath time!
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Satomi's Cancer Blog 