Got up just a bit ago to go downstairs for dinner -my mom helped me and I guess I forgot to mention to Sean I was going down for dinner (girls gonna meet my family @ChuckECheese’s @ 5 in Orange for some dinner and play) but had a little episode going down the stairs – my legs couldn’t keep under me – I have really bad/weak knees especially now with steroids! So Sean had to lift me onto couch but problem is my knees r a problem – they don’t bend certain ways and have a lot of pain! So sat n couch and had dinner on dinner tray – now just relaxing! So dizzy and unstable!
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Best to just rest today since will b back out tomorrow! Rad at 10am -Sean, my mom and Kiyomi going for translation since my mom doesn’t understand Sean’s English very well! Very formal! Then home for rest! My really good cancer support group friend Tina and her hubby r celebrating their 40th anniversary tonight! Happy Anniversary Buddy and Tina – take lots of pics and can’t wait to see them as well as celebrate our birthdays soon! December birthdays ROCK! Don’t get too drunk tonight! Yeah, right, do what u want! Love you all-have a great time!!
Satomi and family
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Went down around 9 to eat something – no shake this morning -toogritty! Had some organic food delivery, and some of Araceli (housekeeper) soup – yummy! Chicken with hominy soup! Kinda spicy but good! Came up after and in bed to rest! My mom went to Sprouts to buy more food for me! Organic food! Now getting hungry again for lunch! Steroids increase my appetite – good? But also reflux! Have to take all diff meds for diff symptoms! Mom just back – lunchtime? Crazy schedule around meal/meds! Tomorrow last radiation! Thursday need to get labs/EKG at St. Joes for my pre-Op labs for Jan 6th port-a- cath placement! Kandice also has well-exam @ pediatrician’s office Th1:30 Lots of stuff next to be done! B4 end of year!
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Just got up – realized I didn’t send my post last night so sent it just now- just went to sleep! Gonna be interesting day – will just rest from yesterday – may go to rad one more time tomorrow if I feel up to it! Want to get up to eat -we’ll see! Already went to bathroom! Took non-food meds! Now need to take meds with foods! Getting hungry!
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Found out that after I got on radiation table – I had a grandmal seizure so that’s probably why I’m super tired now! And probably not going to have another Rad till swelling in my brain subsides a little more but may just take meds and hopefully that will help healing! Suzanne, a palliative nurse came by to discuss my needs! She’s super nice! Discussed my goals! Sean’s worried about me – doesn’t think my Mom is able to help me, physically! She is 73 yearsold! She’s here mainly for moral support! May need more physical support but hopefully I can get help here and there! This week should be interesting – really holiday for most still! Hopefully will start HH PT to get stronger – know my core strength weaker!
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Satomi's Cancer Blog 